Neil is Director for Patient Experience at NHS England, where he leads improvement on non-clinical aspects of quality. His brief includes NHS England’s Commitments to Carers, improving experience for people with cancer, working with users of learning disability services to improve quality, enhancing staff experience and learning from complaints and whistleblowers. Neil joined NHS England in 2013 after a 25 year career in the voluntary sector at organisations including Barnardo’s, Age Concern, Crisis and Asthma UK. Neil has been a Non-Executive Director for NHS South of England, an appointed member of the National Information Governance Board and a trustee of a number of charities across the UK. Neil is a member of the Executive Board for the Beryl Institute, a change agent from the School for Health and Care Radicals and a member of Q, the quality improvement collaborative from the Health Foundation. He tweets as @neilgchurchill.
Nancy Naylor is the Associate Deputy Minister, Delivery and Implementation, Ministry of Health and Long-Term Care (MOHLTC), leading two large divisions. Her portfolio consists of responsibility for Primary Care, Home and Community Care, Local Health Integration Networks, Health System Funding Reform and the advancement of quality initiatives. Nancy is also a member of the Canadian Institute for Health Information (CIHI)’s Board of Directors.
Before joining the MOHLTC in 2014, Nancy served as an ADM in the ministries of Finance, Education and Training Colleges and Universities and has held other senior positions in the Ontario government.
Dr. Laupacis is a general internist and the Executive Director of the Li Ka Shing Knowledge Institute of St. Michael’s Hospital. He is a Professor at the University of Toronto in the Faculty of Medicine and the Institute of Health Policy, Management and Evaluation.
He has published over 350 peer-reviewed articles covering a variety of topics in clinical epidemiology, health services research, health technology assessment and health policy. He engages the public about health care issues (he founded the web sites www.healthydebate.ca and www.facesofhealthcare.ca), and holds a Canada Research Chair in Health Policy and Citizen Engagement.
He has served on numerous academic and governmental advisory committees and currently is the board chair for Health Quality Ontario. Dr. Laupacis has been awarded the Justice Emmett Hall Laureate (2010), the Health Services Research Advancement Award from the Canadian Health Services Research Foundation (2011), was the inaugural recipient of the CIHR’s Barer-Flood Prize in Health Services and Policy Research (2013) and is a Fellow of the Royal Society of Canada (2015).
Patricia Sullivan-Taylor is the Strategic Advisor for Health System Performance at Health Quality Ontario. In this role, Patricia directs the strategic design and implementation of priority projects related to governance, patient relations, performance measurement and reporting. Prior to this role, Patricia developed and delivered funding allocations for hospitals, home and community care agencies and long-term care homes as Director, Health System Funding Policy for the Ministry of Health and Long-Term Care. She also spent a decade with the Canadian Institute for Health Information. Patricia established CIHI’s national project management office and implemented a new primary health care information program and launched eight national analytical reports, electronic medical record standards and a national EMR database to support quality improvement among primary care providers. Patricia is a registered nurse (BSN) and certified project management professional (PMP) with a Master’s in Public Administration.
Sholom Glouberman is Philosopher in Residence at Baycrest. His early experience in healthcare was caring for his dying father. He has been a planner at the McGill University Health Centre in Montreal, Fellow at the King’s Fund in London England, director of Health Policy for Canadian Policy Research Networks, director of an international management program at McGill and founder of Patients Canada. He’s been an adviser in Canada and the UK. He has worked with patients and organizations to create patient partnerships and identify performance targets to humanize healthcare experiences.
In 2015 Sholom underwent a major surgical procedure and was once more a patient. His direct experience and work with others has given him to see the disparity between the patient experience and institutional concerns. He has written four books and many articles. He has just completed a new book: A Patient’s History of Medicine.
Dr. Mohammad Zubairi is a Developmental Paediatrician at Holland Bloorview Kids Rehabilitation Hospital, Clinical Team Investigator with the Bloorview Research Institute, and Assistant Professor, Department of Paediatrics, University of Toronto. He completed his medical school and paediatric residency at McMaster University, and training in developmental paediatrics at the University of Toronto. He received his M.Ed from the Ontario Institute for Studies in Education with a research focus on how clinicians engage in cultural encounters, and how we can best teach about and learn from such encounters. He is also interested in studying how clinicians reflect on their day-to-day practice, and how simulations can be used to support such reflection in the context of health profession education.
Sally Bean is the Director of the Ethics Centre & Policy Advisor at Sunnybrook Health Sciences Centre, a member of the University of Toronto Joint Centre for Bioethics, an Adjunct Lecturer in the Dalla Lana School of Public Health and the Institute of Health Policy Management and Evaluation, an Associate Member of the School of Graduate Studies at the University of Toronto, and an Adjunct Lecturer at Osgoode Hall School of Law at York University. Sally is the co-chair of the University of Toronto Joint Centre for Bioethics Medical Assistance in Dying (MAID) Implementation Task Force. Her research areas of academic interest pertain largely to health institution and health system ethics with an emphasis on health law and policy.
Canadian Comedy Award Winner, Daniel Stolfi is an established actor, comedian, writer and cancer patient advocate. In March of 2008 Daniel was diagnosed with Acute Non-Hodgkin’s Lymphoma, an aggressive form of cancer requiring equally aggressive chemotherapy and radiation treatments over the next two years of his life. Through his ongoing battle with the disease, Daniel created his simultaneously heart warming and hysterical, Canadian Comedy Award winning one-person show, “Cancer Can’t Dance Like This”. Over the past six years, Daniel has toured the country sharing his story, laughing in the face of adversity. To date the show has helped raise over $85,000.00 for health related charities and organisations across Canada. Daniel is currently penning his memoir, “Cancer Makes you Gangster” – Finding the comedy in tragedy.
Twitter Handles: @cancercantdance and @danielstolfi
Raj Sewda is the Chief Nursing Executive and Chief Privacy Officer at Runnymede Healthcare Centre, a 200-bed continuing care hospital in Toronto. He is a certified Health Executive from the Canadian College of Health Leaders and has over 16 years of diverse experience working in acute care teaching hospital, post acute care/ rehabilitation, homecare, and public health. Raj’s areas of expertise include patient care operations, infection prevention and control, occupational health, nursing, clinical education, health records management, privacy patient safety, risk management, emergency preparedness and quality improvement.
Raj received his Masters in Business Administration and a Graduate Diploma in Management from Athabasca University. He has a Certificate in labor Law from Osgoode Hall Law School at York University and holds a Bachelor of Science in Nursing from the University of Toronto.
As a certified Lean Six Sigma Black Belt, Raj has a reputation for building high performing teams that provide quality care at lower costs. He holds a board certification in Healthcare Quality as well as Infection Control and is a member of the Canadian College of Health Leaders and American College of Healthcare Executives.
Raj’s interests include exploring innovative models of care delivery for chronic disease management including: tele-support, e-referrals, remote patient monitoring, LEAN based optimizations, and healthcare Kaizen. A surveyor with Accreditation Canada, Raj also dedicates his time to volunteering on provincial and national committees including his role as vice-chair of programs committee and membership committee for the Canadian Chapter of American College of Healthcare Executives.
With his understanding of the complex nature of healthcare delivery across all sectors, combined with his real world experience and extensive education Raj is a strong and dedicated healthcare leader and executive.
Dr. Velji holds the position of Vice President Clinical Services at Ontario Shores Centre for Mental Health Sciences. Previously, Dr. Velji was Vice President for Mental Health Services in London, Ontario; Chief Operating Officer and Chief Nursing Executive at Baycrest; and Vice President of Patient Care and Chief Nursing Executive at Toronto Rehabilitation Institute, which is now a program of University Health Network.
Dr. Velji’s responsibilities extend to provincial and national leadership. She is the the Immediate Past President and Chair of the Board of Directors of Canadian Nurses Association, Member of the Board of Directors of Accreditation Canada/Health Standards Organization and Chair of the Health Canada Panel on Violence Evidence Guided Action.
At the system/global level, Dr. Velji is a consultant to global sites, including East Africa, the Middle East and Asia, for development of co-design, quality of care and academic plans.
Nancy Lefebre is responsible for advancing Saint Elizabeth’s shared value strategy, positioning the organization as a leader in social innovation and impact. Her special interests include end of life care, knowledge mobilization and community partnerships. In her quest to ensure that a strong evidence base underpins health care practices, Nancy has established a collaborative research centre and a network of health career colleges. She is one of the first nursing leaders in Canada to complete the Executive Training for Research Application (EXTRA) Fellowship program. Nancy brings to Saint Elizabeth more than 25 years of experience in the North American health care sector. With a focus on community care from front-line practice to management, as well as the development of new business and clinical leadership.
DURHANE WONG-RIEGER, PHD is President & CEO of the Canadian Organization for Rare Disorders (the umbrella organization of patients and patient groups) and chair of the Consumer Advocare Network, a national network for patient engagement in healthcare policy and advocacy. She is also President & CEO of the Institute for Optimizing Health Outcomes (providing training and direct service on health coaching and patient self-management). Internationally, Durhane is Chair of Rare Disease International, Past-Chair of the International Alliance of Patient Organizations, Member of Health Technology Assessment International Patient /Citizen Involvement Interest Group and member of the Editorial Board of The Patient- Patient Centred Outcomes Research. She is a certified Health Coach and licensed T-Trainer with the Stanford-based Living A Healthy Life with Chronic Conditions.
Dr. Wong-Rieger has served on numerous health policy advisory committees and panels and is a member of the Working Group for Ontario’s Rare Disease Strategy and the Patient Liaison Forum for the Canadian Drugs and Technologies in Health.
Durhane has a PhD in psychology from McGill University and was professor at the University of Windsor, Canada from 1984-1999. She is married and has two children. She is a trainer and frequent lecturer and author of three books and many articles.
Keith Taylor has been an active Pfa at Thunder Bay regional health sciences Center for 6 years. He is the co-chair of the patient-family advisory council, a voting member of the senior management council, past member of the board quality committee and recent member of the boards quality of care committee (possibly the first and only patient on such a committee).
Presently he sits on the Strategic Plan Steering Committee, CEO search committee, and the Thunder Bay Regional Research Institute Strategic Plan Steering Committee. Keith has been involved in hiring panels for all high level hires (VPs, mangers, directors and CEO). He presents PFCC to all new employees and board members as well as all new learners at northern Ontario school of medicine. He is also a member of Accreditation Canada's working group to set the standards for patient centred care, and a recent recipient of CPSI’s National Champion Award as a leader in integrating the patients’ voice into health care. Keith has presented our philosophy of care provincially, nationally and even internationally.
Prior to joining VHA, Joy trained as a lawyer in Canada and the United States, practicing law on both sides of the border in various roles; litigating, negotiating and mediating. Joy has been with VHA Home HealthCare since 2001. She served as Director, Contracts, Quality and Risk Management for 6 years during which time she was the Executive Co-Lead with Anne Wojtak for the collaborative development of ‘Changing the Conversation’. Joy is now VHA’s General Counsel and Privacy Officer.
Cathy Bachner, B. A. Sc., B. Ed. is a teacher with the Avon Maitland District School Board and recipient of a 2016 Always Learning Award for her efforts to engage, inspire and innovate in the classroom. In late 2012, she contracted life-threatening necrotizing fasciitis and consequently encountered a complex web of healthcare professionals addressing her diverse medical needs for survival and continuing rehabilitation.
Cathy is the Patient Partner on a CFHI supported Huron Perth Healthcare Alliance (HPHA) project to implement Bedside Transfer of Accountability; and on the HPHA Patient Experience Steering and Working Committees. Cathy served as a Patient Partner on the Registered Nurses' Association of Ontario (RNAO) Advancing Healthcare Leadership & Professional Practice in a Digital Era Panel. Currently, she is a member of the Health Quality Ontario's Patient, Family and Public Advisors Council.
She has international experience presenting on the integration of patients and families into healthcare teams and the particular contributions they bring to the change process that positively impacts patient satisfaction, safety, engagement, and staff satisfaction.
“My multifaceted medical experience was mind-opening. I am grateful to extend the knowledge and observations made during my extensive hospital admissions to provide the patient perspective as we co-design an increasingly effective, patient and family inclusive, healthcare system. It is an honour to work with such caring and dedicated professionals."
Karen Born, MSc PhD, Knowledge Translation Lead, Choosing Wisely Canada
Karen Born is Knowledge Translation Lead for Choosing Wisely Canada. She is responsible for the dissemination of campaign content to patients and the public and the integration of Choosing Wisely Canada into medical education. Karen also helps organize the Choosing Wisely international collaboration. Karen co-founded the health care policy blog, www.healthydebate.ca and is an Assistant Professor in the Institute of Health Policy, Management and Evaluation at the University of Toronto.
Karen Born’s Twitter handle: @bornk
Choosing Wisely Canada’s Twitter Handle: @ChooseWiselyCA
Anne Wojtak, DrPH, MHSc, is the Executive Lead for Transformation at the Toronto Central Local Health Integration Network and is an Adjunct Faculty member at the Institute of Health Policy, Management and Evaluation, University of Toronto. Her research focuses on public reporting on health care performance and quality and she has published numerous articles on home care, with a particular focus on patient experience.
Mario Di Carlo has held key leadership positions in public and crown corporations. His areas of focus have been customer service and sales, as well as healthcare delivery.
Mario was struck by polio at the age of 1 year old; a disease now virtually eradicated. The illness left him with significant physical weaknesses. Since youth, he has faced challenges that have shaped his approach to living with a permanent condition and how to interact with the healthcare system. By adopting a positive disposition, he has learned ways to successfully navigate his environment.
Over the years, he began to use his personal and professional experience to help bring forward causes dear to his heart. He got involved on the ground and on the board of numerous non-profit organizations dealing with issues related to health, poverty and education such as the Polio Quebec Association, the Butterfly Wings Foundation, the Association québécoise de la douleur chronique, the West Island Mission, the Royal Astronomical Society of Canada and the Regroupement provincial des comités des usagers. He also sat on the board of the McGill University Health Centre (MUHC) and headed the Patients’ Committee of the institution. He collaborated in the Transforming Care at the Bedside (TCaB) project, also at the MUHC. As Master Trainer of the Chronic Disease Self-Management Program (CDSMP) and Chronic Pain Self-Management Program (CPSMP) from Stanford University, known as "My Tool Box" at the MUHC, he played a key role in spreading the program across Québec and beyond. In the last several years, his involvement in patient engagement projects has become the main focus of his attention, including research, education, co-designing and speaking engagements, collaborating with organizations such as CIHR-SPOR, CFHI, UdeM, MUHC, Arthritis Society, Accreditation Canada, CPS, PFCC, Choosing Wisely, NAPS and ISOQOL.
Mario Di Carlo holds a Bachelor of Arts in Translation from Concordia University. He participated in editing the French version of Living a Healthy Life with Chronic Conditions (third, fourth and fifth edition), as well as in translating the Workbook and Leader Manual of the Chronic Pain Self-Management Program (CPSMP).
Judith John’s career spans all aspects of communications, marketing and public affairs, with an extensive background in arts, culture, not-for-profit, health and social services.
Ms. John was a hospital executive and remains active in health care. She was Vice President of Communications and Public Affairs at the Hospital for Sick Children and Vice President of Communications and Marketing at Mount Sinai Hospital and Foundation. Ms. John works with Toronto Western Hospital, Princess Margaret Cancer Centre, University Health Network, Michael Garron (Toronto East General) Hospital and Sinai Health System, concentrating on the patient experience, partnerships and communications. She handled government and stakeholder relations for the Council of Academic Hospitals Ontario.
As a patient advocate, Ms John has extensive speaking experience, including as keynote presenter for Health Quality Ontario, the Michener Institute convocation, University of Toronto, Schulich School of Business, the Ontario Brain Institute, several LIHNs, Addiction and Mental Health Foundation, McMaster Health Forum and the Acquired Brain Injury Society. A patient advisor for UHN’s Partners in Care program, Ms. John is a trained Patient Partner. She was part of the Province of Ontario’s Phoenix Project on education and patient care, and Patients Canada. She was on The Change Foundation patient/family centred care awards panel.
She currently chairs the Province’s Quality Management Partnership Citizen Advisory Committee, and sits on the Partnership’s Healthcare System Reference Group, senior leaders from organizations having systems role in healthcare quality. She was part of the Ontario Brain Institute International Review Panel and McMaster Health System Sustainability Forum.
Ms. John has broad community experience, having served as Vice-President, Marketing and Communications, at United Way of Greater Toronto and Harbourfront Centre. She is currently Vice-President of Marketing and Communications for the Royal Ontario Museum Governors. Ms John is a member of the Board of Directors for the Ontario Trillium Foundation.
Her career began in the arts, heading communications for the Art Gallery of Ontario’s Treasures of Tutankhamun exhibition, and Harbourfront Centre’s fundraising and launch of its contemporary gallery, the Power Plant. For two decades, she was president of Acoustiguide, which provided recorded tours to galleries and museums as well as major events, including the Royal Ontario Museum, the Montreal Museum of Fine Arts, and Expo 86, amongst many others.
A writer and communications / marketing consultant, executive coach, facilitator and media trainer, Ms John has taught public relations, communications, ethics and marketing at universities and colleges across Ontario and has been a guest speaker for institutions worldwide, including England’s National Health Service.
Other community affiliations include the boards of ABC Life Literacy Canada and Theatre 20, Public Affairs Advisory Committee for the Ontario Trillium Foundation, and the Marketing Advisory Board for the Rotman School of Management. Ms John is on the Advisory Board for the Ryerson City Building Institute, as well as The V Generation, an organization promoting meaningful volunteerism for retirees and senior citizens.
For 13 years Lena has led the province of British Columbia’s strategy for measurement and reporting of patient-centred care in alignment with the strategic priorities of BC's Ministry of Health and seven health authorities. Lena is an Occupational Therapist with over 30 years of health care experience working with clinical, support, leadership, and governance teams. Since 1998 Lena has been a surveyor with Accreditation Canada, specializing in rehabilitation, acquired brain injury, long term care, home care, and health systems. Between 2004 and 2006 Lena was a Picker Institute USA Fellow, exploring resident and family experiences related to loneliness, helplessness and boredom in long term residential care. Lena has supported the patient-centred measurement work of many organizations, including the Canadian Partnership Against Cancer, the Canadian Foundation for Health Improvement, Health Quality Ontario, the Ontario Hospital Association, the Canadian Institute for Health Information, the Nuffield Trust, King’s Fund and National Voices UK, Picker Institute Europe, the International Foundation for Integrated Care, the Bureau of Health Information, NSW, Australia, and the British Columbia Office of the Seniors Advocate. Lena is passionate about translating data into information...and information into action to improve the satisfaction, experiences and clinical outcomes for patients, their families and their supporters.
Candace brings a wealth of sector experience to her role as Chief Executive Officer. She is a strong leader, effective communicator and practiced health care professional who leads and delivers results on wide ranging and complex projects. Previously, Candace held positions such as Chief Operating Officer, Corporate Project Director, Administrator and Director of Care in long-term care. She started her career as an RN and worked in the Acute Care Sector, Rehabilitation, Community Nursing and the Aeromedical Nursing fields. Candace is a strong advocate for long-term care both provincially and nationally as an executive with the Canadian Association of Long Term Care. Candace holds an MBA from Western University Richard Ivey School of Business and is a graduate of Queens University Executive Development Program and the University of Toronto Rotman School of Management, Advanced Health Leadership Executive Program. Candace also holds the ICD.D designation with the Institute of Corporate Directors.
Jodeme joined The Change Foundation in April 2017 as Executive Lead, Strategy and Innovation. In this role, she is responsible for facilitating our strategic focus, creating more international relationships and examining opportunities beyond our current priorities to inform policy and practice in Ontario.
She brings over 20 years of experience in the Ontario health care and health policy sector and is an adjunct lecturer and co-instructor at the University of Toronto’s Institute for Health Policy, Management and Evaluation. Most recently Jodeme was the Chief Strategy Officer, Senior Director of Strategy and Planning and previously Lead, Health System Integration for Complex Populations and Primary Care at Toronto Central Community Care Access Centre. In those roles, Jodeme worked locally and internationally with government, organizations and providers across the health system, clients and families. She has also acted as principal and co-principal investigator on a number of research initiatives to inform policy and practice in Ontario.
Jodeme has been a groundbreaker in driving integration based on lived experiences of clients and caregivers, which has informed new models of care, influenced policy and has been used to inform care delivery in other countries. Jodeme’s leadership at the Toronto Central CCAC was instrumental in achieving the following awards:
Jodeme holds master’s degrees in both Social Work and Health Science in Health Policy, Management and Evaluation, and is a graduate of the Advanced Health Leadership Program from the Rotman School of Management and the Creating Shared Value Executive Program at Harvard Business School.
Christine Penney is currently the Vice President of Community Programs at Cornwall Hospital. Christine has worked in health care for close to 30 years in various capacities from frontline nursing, teaching at Nunavut Artic College, Clinical Trials Coordination, and in Research & Development with Accreditation Canada. She has held various administrative roles, including Director of Quality Performance at Cornwall Hospital, and Executive Director with Addiction Services of Eastern Ontario. Christine is a strong supporter and advocate for clients with mental health and addiction issues and for community collaboration and is spearheading the local Stormont, Glengarry, Cornwall & Akwesasne Health Link initiative and the Lead Agency initiative for Child & Youth Mental Health for her region. Christine holds a Bachelor Degree in Nursing from Memorial University of Newfoundland (1986); a Bachelor of Science with a major in Psychology from Dalhousie University (1997); and a Master’s of Science with a major in Psychiatry from McGill University (2000).
Lillian works as a Project Manager to support the BC Patient Centred Measurement Working Group, responsible for the planning and implementation of scientifically rigorous, province-wide, coordinated surveys of patient, resident and family satisfaction, experience of care, and patient-reported outcomes in defined priority sectors. Since August 2014, Lillian has focused on supporting the design, implementation and management of the BC OSA’s Residential Care Survey – a landmark province-wide initiative to improve the care and services our seniors receive in long-term residential care. Prior to that, Lillian spent several years working as an analyst with the BC Patient Satisfaction Steering Committee and the BC Provincial Specialized Eating Disorders Program for Youth and Adolescents. She has also worked on health-related research projects in Ontario and South Africa. Lillian received a bachelor’s degree from the University of Toronto and completed her master’s degree in International Public Health from University of Sydney with an emphasis on political affairs and humanitarian aid. Lillian is also seen as a provincial expert in building capacity for use of survey data to inform quality improvement at the point of care having developed a toolkit to support local leaders and clinicians.
Shirley Fenton has over 30 years of experience in business development and information technology focused on innovative Internet applications, community information portals, and new tools and devices for health care. Her interests are Innovation Science, Health Informatics, eHealth, Intelligent Communities, Community Informatics and Communities of Practice. She is involved in research programs related to technology and its deployment. She is active in building research and technology transfer relationships with government and industry. She is a Research Associate, Computer Systems Group, University of Waterloo and Vice-President, National Institutes of Health Informatics. She serves on the Centre for Distance Education Health Information Management Program Advisory Committee and previously, on the HIMSS Ontario Board of Directors (2015-2017). She received the Zonta International Women of Achievement Trailblazer Award (2011). She was the inaugural recipient of the HIMCC Human Foundations Award (2016). She loves playing tennis. Shirley obtained a Bachelor of Environmental Studies (Honors) and a Masters of Arts from the University of Waterloo.